Personal Stories : Disability

Personal Stories : Disability

Personal Stories on Disability

Read real-life testimonies of children who have been born with a disability or mothers who were advised to abort but decided to give life to their child. 

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BELLA BURGESS

A Liverpool mum said her daughter who has Down's syndrome is the best thing that has ever happened to her. Laura Burgess, 35, from Allerton has come out to defend the discrimination against people with the genetic condition following a BBC2 documentary featuring actress Sally Phillips.

READ MORE HERE: http://www.liverpoolecho.co.uk/whats-on/family-kids-news/10-reasons-love-world-downs-11989907

BAILEY MATTHEWS

This story will melt your heart. An eight-year-old boy with cerebral palsy was cheered over the finish line as he completed his first triathlon unaided. Bailey Matthews, from Doncaster in the UK, abandoned his walking aid to complete the event. He received a warm reception as, despite several tumbles, he crossed the finish line at Castle Howard, North Yorkshire, in triumph.

JAY BEATTY


HOW COOL is this: this Young Boy With Down Syndrome Officially Scored The Best Goal In Scotland Last Month. #GoJay

Celtic supporter Jay Beatty became a wordwide star last season when our video of him on the pitch with Greek striker Georgios Samaras caught the hearts of fans around the globe, clocking up almost 1.5 million hits and counting. Celtic's opponents Hamilton Accies made Jay the guest of honour for the match on 17/01/2015 and he went on the park at half time to score a goal in front of his fellow fans.

 

READ MORE HERE

MATTHEW VAWTER

The parents of a seven-year-old boy, who has Down’s syndrome and was given a zero per cent chance of survival in the womb, say he shows them “what true joy looks like”.

US couple Aaron and Amy Vawter were told their unborn son Matthew had severe heart defects, two clubbed feet, fluid around his kidneys and enlarged ventricles in his brain after a routine scan at 20 weeks. Doctors told the couple that there was “no reason” for Amy to put herself and her body “through the rest of the pregnancy”, and offered an abortion, which the Vawters refused.

READ MORE HERE

RYAN WILLIAMS

From the doctors’ perspective, perhaps they believed they were doing the “best” for everyone when they advised Natasha Williams to abort her unborn baby after a scan at 20 weeks diagnosed him with Ellis-van Creveld syndrome–a bone growth disorder. The 26-year-old Williams was told her unborn son’s body “would probably not develop sufficiently to support his organs,” Emma Innes of the British newspaper The Daily Mail wrote today.

READ MORE HERE

WILLOW DUFFIELD

Leanne and Chris Duffield defied doctor's advice - and little Willow has defied all the odds and is thriving.

READ MORE HERE

ROSIE BACHOFNER

When Tom Bachofner, 38, and his wife Karen’s unborn child was diagnosed with Down’s syndrome, they didn’t question whether they’d go ahead with the pregnancy. Tom tells of the ignorance they faced, and the incredible moments they shared while bringing up Rosie.

READ MORE HERE

JENNIFER BRICKER

Jennifer Bricker was born without legs, and her biological parents gave her up for adoption because they couldn’t bring themselves to raise her. That was when she was adopted by Sharon and Gerald Bricker, who decided that they would raise her as they raised all their other children. They always told her that the one word she wasn’t allowed to say was “can’t.” Clearly, it had a huge impact on her life. She learned how to play just about every sport you can imagine, and even became her state’s best tumbler (in gymnastics), by high school.

 

ROBYN AND HARRY

Robyn and Harry

Robyn and Adam Wilson were advised to abort their unborn son after a 12-week scan revealed there was a chance he would be born with a life-limiting illness. Doctors warned baby Harry was unlikely to survive pregnancy and a termination appointment was booked


READ MORE HERE 

ELIZABETH SCHILTZ

Why I kept my baby after finding out he had Downs Syndrome.

READ MORE HERE

SAMUEL WILSON

A 10-week-old baby has defied the odds to survive a rare birth defect despite his mum being told to consider a termination. Little Samuel Wilson has battled to stay alive everyday of his life after he was born with congenital diaphragmatic hernia (CDH), a condition that meant his stomach and intestines developed in his chest cavity because of a hole in his diaphragm.

READ MORE HERE

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JACK BARR

"When my 2-year-old daughter was born, I told my wife I did not want her. I spent an entire year depressed because I believed everything society told me about having a daughter with Down syndrome. Now two years later she is the joy of my life.

She is not a monster, she is not ugly, she is not retarded, and she is not a burden on our family. She is a beautiful little girl that brings joy to our daily lives. I understand the fear of having a child that is different, so I want to encourage you to consider taking the road less traveled and see the beautiful things a child with Down syndrome can show you."
Jack Barr

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NIK HOOT

High school student Nik Hoot was never supposed to survive his abortion, let alone become his school’s best wrestler. His story will inspire you.

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ELLA-JAI

ELLA-JAI

PHOTO: Shields Gazette

Five weeks before Ella-Jai was born, her parents Toni-Louise Hubbart and Daniel Harvey were advised to abort their baby because she had developed hydrocephalus – also known as water on the brain. READ MORE HERE

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DEAR FUTURE MOM

 Watch this beautiful video released for Down Syndrome Day, 21 March 2014

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LAURA AND NATHAN

Nathan Phillips

Photo: Mirror.co.uk.

Little Nathan Phillips was not expected to survive and his parents were advised to have an abortion. Actress Laura, who has appeared in films and theatre shows, said Nathan junior's safe arrival was a huge relief after she was advised early in the pregnancy that the baby may only survive half an hour, if born alive. Doctors told her to consider an abortion after irregularities in scans lead doctors to think the youngster had inherited a deadly combination of genes. But Laura, who suffered complications throughout the pregnancy, ignored advice and decided to carry on the pregnancy. READ MORE HERE

 

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HAZEL AND BABY AMEILIA

HAZEL AND AMELIA

Hazel Wiggins, 36, went to Hexham General Hospital after suffering from bleeding and doctors there told the 11-week-pregnant mother that her unborn baby had died. They recommended she take abortion drugs to “terminate” the pregnancy and expel the dead body of her unborn child. READ MORE HERE

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RACHEL

Rachel Colins and baby Alfie

Rachel Collins was told she should abort baby Alfie when she was diagnosed with oligohydramnios - meaning her unborn son was in too little amniotic fluid. She has since given birth to a healthy baby boy. So wonderful when mothers choose life over despair. READ MORE HERE

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FAITH

Faith Martin

"We wanted to give her a chance..." Faith's parents, Jessica Williams and Aaron Martin, were told she could be severely disabled but they did not consider aborting her as they wanted to give her a chance. READ MORE HERE

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AVA and TONI

 Ava Thomas and Toni

"We were told if the baby did survive it would live for a short time after birth before passing away, They said there was no hope - they said 'this baby is going to die'." "We were advised to terminate" READ & SHARE this beautiful story of a mother who realised that her baby's life mattered

http://www.nzherald.co.nz/lifestyle/news/article.cfm?c_id=6&objectid=10887863

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ADELE AND ELI

In this moving video Adele shares her story about choosing life for her son Eli, who was diagnosed with Spina Bifida during the 20 week scan, and why she and her husband Paul wouldn't have it any other way.

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PABLO AND LUCA

When doctors told Pablo Poncini his son may have Down syndrome, he said he fainted. "Everything seemed to have gone wrong," he recalls in this short film. "It was as if the road we had started as a family had come to an end."  "Little by little, the Down syndrome disappeared and Luca appeared," the father recounts tenderly in the clip. READ MORE HERE

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LIANE AND MILEY

Doctors advised Liane to abort her 'severely brain damaged' daughter...she refused and gave birth to a perfectly healthy child

READ MORE: http://www.dailymail.co.uk/health/article-2513692/Liane-advised-abort-brain-damaged-daughter-gave-birth-healthy-child.html#ixzz2lktUhnoF

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LINDSEY AND MARLENA

LindseyMarlena

We went in for our routine fetal anatomy ultrasound around 21 weeks gestation. I was so naive. I was just happy to learn the sex of our new baby. Anomalies—the true reason for ultrasounds—were the last thing on my mind.

READ MORE: http://blog.secularprolife.org/2013/09/adverse-prenatal-diagnosis-marlenas.html

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MICHELLE AND SOPHIA

MichelleWhitten

A mother’s love for her child goes beyond genetic makeup — a truth Michelle Sie Whitten knows all too well as she beams about her 10-year-old daughter, Sophia, who just happened to be born with an extra chromosome. READ MORE: www.lifenews.com/2013/09/16/head-of-down-syndrome-group-i-chose-life-despite-counselor-pressuring-me-to-abort/

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SARAH AND AARON HAGAN

CV_SarahAaronHagan

During her 24-week pregnancy scan, Sarah Hagan says medics at Sunderland Royal Hospital told her the child would have ‘no hope of survival’. READ MORE: http://www.dailymail.co.uk/health/article-2409819/Mother-Sarah-Hagan-sues-hospital-brain-dead-son-born-kicking-breathing.html

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LIZ AND JOHN MCDERMOT

Blathnaid Ni Chofaigh talks to Liz McDermott, who found out that she was expecting a baby with no limbs and possible brain damage, leaving her with a major dilemma.

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HOLLIS FAMILY

“We live in a small town in Central Illinois and woke one morning in April 2011 to find our home and cars had been spray painted,” says Anne Hollis. The family had been attacked because her two daughters have Down Syndrome: “RETARDS.” “Get Outta here.” And other unprintables. “That day changed my life forever.” But her two sons said they wanted to make a video, to “Speak up for our sisters.” Meet the Hollis Boys, age 6 and 7. Watch, share, join Everyone Matters - to create a world where EVERYONE is free to be EXACTLY who they are, without shame, apology - or attack.

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HEATH AND PAISLEY

Heath White, a military man, marathon runner, and all-around success story, was suddenly faced with a choice. During his wife’s second pregnancy, Heath discovered that his new daughter would be born less than perfect, to his way of thinking. Heath admits that he pressured his wife to have an abortion, yet she bravely refused. Read more here

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CATHERINE AND TYLER

HD_A_Dis_Catherine Moore - Catherine Moore was advised...

A teenager who became the youngest mother in Britain to a Down’s Syndrome baby after falling pregnant aged 15 has spoken of her pride in proving her doubters wrong. Despite being just a child herself, single teen mother Catherine Moore, now 19, refused to give her baby up after learning he had Down’s Syndrome, vowing to raise him herself despite concerns that she wouldn’t cope. Read more here

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CARRIE AND ELIZABETH

Dis_Carrie Chilvers - Carrie Chilvers

A mother who said she was told to have an abortion three times has described her relief after she gave birth to a healthy girl. Carrie Chilvers, 28, said a doctor told her there was only a one five five chance her baby would survive when she had her three-month scan at Colchester General Hospital, Essex. Read more here

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GEMMA AND TAYA

A_Dis_Taya Kenedy - Personal Stories : Disability...

Taya's devoted mum, Gemma Andre, couldn't be more proud. 'I always believed my daughter was stunning but I thought, "I'm her mum. I'm biased,"' she says. 'When people say "poor you" I find it offensive and irritating,' said Taya's mother Gemma. Read more here

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MARIE

Every morning when Marie Ideson wakes, her first thought is of a little girl called Lillie. Today, had she lived, Lillie would be six. And although Lillie would have had Down's syndrome, Marie is sure of one thing: 'Despite any disability, my daughter would have been incredibly well loved. And whatever her future was, I would always have been there for her.' Read more here

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KENNADEE

Don and Shawna Albright discuss the series of events that took them from being told to terminate a pregnancy to finding the one surgeon in the world who could fix their unborn daughter's heart defects. Read more here

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JAYDEN

When Leeann Phelan was told her unborn baby had an incurable brain abnormality, she faced an agonising decision. Doctors said he would be stillborn or severely disabled and advised her to have an abortion. But Miss Phelan and her partner Stephen Crane stoutly refused and carried on with the pregnancy. Read more here

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REBECCA

Rebecca Atkinson has not had her unborn baby tested for Down's syndrome. She knows some people will say that was irresponsible. But how, as a disabled person herself, could she let her child's physical condition decide whether or not it was born? Read more here

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CONNOR

Meet Connor Owen - a remarkable three-year-old who defied seemingly overwhelming odds to become one of Wales' youngest kidney transplant patients. Read more here

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ISABELLE

Just a month into a new relationship, 17-year-old Holly Ford found herself pregnant. Confused and scared she didn't know what to do. Then doctors said her unborn baby could be badly disabled. Some thought she should have terminated her pregnancy but Holly refused. And when baby Isabelle was born with a rare fatal syndrome few thought the young mum would cope. "Lots of people thought I was too young to have a baby," Holly, now 19, says. Read more here

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KAI

Well before he was born doctors gave Kai Purdy no chance of survival. Scans showing a life-threatening heart condition convinced specialists he had a rare genetic disorder which would probably leave him stillborn. Read more here

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HEIDI

The mother of a little girl born with Down's syndrome says despite her initial heartbreak she opposes screening for the condition because it may encourage abortion. Heidi Crowter was diagnosed with Down's soon after she was born. Her mother Liz, who already had two healthy sons, says she initially felt "nothing" for her new baby. Read more here

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BRYCE DANIEL

Bryce Daniel's mother was advised to abort her son and was told he would not live long. Watch this moving video of their struggle and the story of a mum whose son was born with hydrocephalus. Read more here

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THOMAS LAXUS

Facing death can be hardest for a family expecting new life. Follow T.K. and Deidrea Lauxs journey after they learn that their unborn son has a genetic disorder called Trisomy 13. They hope the intimate look helps others understand and cope with infant loss. Read more here

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OLDENBURG BABY

The Oldenburg Baby was the name given by the German media to Tim, a child born at the Städtische Frauenklinik hospital in Oldenburg, Germany on 6 July 1997. Read more here

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SPINA BIFIDA CONFERENCE

At the International Federation of Spina Bifida and Hydrocephalus (IF) conference in 2000, 270 people with spina bifida from all over the world gathered in Toulouse and adopted a resolution which stated that the quality of their life should not be a reason for abortion or euthanasia. This document was the basis for the IF policy document the right to be different, accepted by all members of the General Meeting in 2002. Read more here

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TAKE A CLOSER LOOK. BECAUSE WHO IS PERFECT

 

Disabled mannequins elicited astonished looks from passers-by on Zurich's Bahnhofstrasse today in December 2013. Between the perfect mannequins, there were figures with scoliosis or brittle bone disease modelling the latest fashions.

One had shortened limbs; the other a malformed spine. The campaign was devised for the International Day of Persons with Disabilities by Pro Infirmis, an organisation for the disabled. Entitled "Because who is perfect? Get closer.", it is designed to provoke reflection on the acceptance of people with disabilities. Director Alain Gsponer has captured the campaign as a short film.

The figures are life-sized, three-dimensional representations of Miss Handicap 2010, Jasmin Rechsteiner, radio presenter and film critic Alex Oberholzer, track and field athlete Urs Kolly, blogger Nadja Schmid and actor Erwin Aljukic.

"We often go chasing after ideals instead of accepting life in all its diversity. Pro Infirmis strives especially for the acceptance of disability and the inclusion of people with disabilities," says Mark Zumbühl, a member of the Pro Infirmis Executive Board, in describing the campaign.